rare disease | The latest from Inquirer 黑料社 Latest Philippine 黑料社 for Filipinos Thu, 28 Sep 2023 16:06:14 +0800 en-US hourly 1 https://wordpress.org/?v=6.5.5 Spinal Muscular Atrophy: Genetic disease that kills, maims kids but with no testing capability in PH /1838107/spinal-muscular-atrophy-genetic-disease-that-kills-maims-kids-but-with-no-testing-capability-in-ph /1838107/spinal-muscular-atrophy-genetic-disease-that-kills-maims-kids-but-with-no-testing-capability-in-ph#respond Thu, 28 Sep 2023 14:59:29 +0000 /1838107/spinal-muscular-atrophy-genetic-disease-that-kills-maims-kids-but-with-no-testing-capability-in-ph /1838107/spinal-muscular-atrophy-genetic-disease-that-kills-maims-kids-but-with-no-testing-capability-in-ph/feed 0 Healthcare experts: Rare disease law fund remains ‘inadequate’ /1750163/healthcare-experts-rare-disease-law-fund-remains-inadequate /1750163/healthcare-experts-rare-disease-law-fund-remains-inadequate#respond Thu, 30 Mar 2023 14:16:58 +0000 /1750163/healthcare-experts-rare-disease-law-fund-remains-inadequate /1750163/healthcare-experts-rare-disease-law-fund-remains-inadequate/feed 0 Enforcement of law for Filipinos with rare disease, a long-drawn battle /1740655/7-years-later-group-says-long-way-to-go-for-enforcement-of-law-for-filipinos-with-rare-diseases /1740655/7-years-later-group-says-long-way-to-go-for-enforcement-of-law-for-filipinos-with-rare-diseases#respond Thu, 09 Mar 2023 21:14:49 +0000 /1740655/7-years-later-group-says-long-way-to-go-for-enforcement-of-law-for-filipinos-with-rare-diseases /1740655/7-years-later-group-says-long-way-to-go-for-enforcement-of-law-for-filipinos-with-rare-diseases/feed 0 Public health stakeholders urge gov’t to sustain Rare Disease Act /1653431/public-health-stakeholders-urge-government-to-sustain-rare-disease-law-implementation /1653431/public-health-stakeholders-urge-government-to-sustain-rare-disease-law-implementation#respond Thu, 25 Aug 2022 22:09:48 +0000 /1653431/public-health-stakeholders-urge-government-to-sustain-rare-disease-law-implementation /1653431/public-health-stakeholders-urge-government-to-sustain-rare-disease-law-implementation/feed 0 Potential coronavirus treatment granted rare disease status /1247987/potential-coronavirus-treatment-granted-rare-disease-status /1247987/potential-coronavirus-treatment-granted-rare-disease-status#respond Wed, 25 Mar 2020 06:45:18 +0000 /1247987/potential-coronavirus-treatment-granted-rare-disease-status /1247987/potential-coronavirus-treatment-granted-rare-disease-status/feed 0 Terminally-ill British baby Charlie Gard dies /918599/terminally-ill-british-baby-charlie-gard-dies /918599/terminally-ill-british-baby-charlie-gard-dies#respond Sat, 29 Jul 2017 11:12:00 +0000 /918599/terminally-ill-british-baby-charlie-gard-dies /918599/terminally-ill-british-baby-charlie-gard-dies/feed 0